March 6th is Awareness Day for us lymphies, a day to honor and celebrate all who are living and coping with the disease. It’s also a day to show the world that this is no longer a rare condition, and that we need proper treatment, coverage, and support.
How can you participate?
- Show your support by wearing turquoise or a butterfly, the official colors and symbol of lymphedema.
- Post on Facebook or Twitter about Lymphedema Awareness day to start a discussion about living with lymphedema and the care we need.
- Tell a fellow lymphie that you appreciate the courage they’ve shown in living with their disease.
- Write a letter to your insurance company to appeal denial of coverage.
- Write to your Senator to get a resolution passed that will make March 6th the official day of awareness.
Enjoy today – prop your feet up and relax! You earned it, lymphie.
I LOVE that ribbon!!!! Where did you get it? Lovely……
I know, it’s so pretty :) You can buy them on LymphNet.org:
http://www.shop.lymphnet.org/product.sc;jsessionid=B74AA6545C9C0A584D5AE7F0F006F289.qscstrfrnt01?productId=192&categoryId=7
Thanks for spreading the word and advocating for others to join! You’re super-inspirational with your dedication to this blog! : )
Thanks, Rosie :) that means a lot!!
i never knew there was an awareness day for lyphedema, which is great as not many people know what it is , im a 19 year old girl with lymphodema in both legs and it took me 3 years to be diagnosed as none of my local doctors had ever heard of it!
It’s astonishing how few doctors know! I had a similar experience when I had lymphorrhea- it was awful, I felt hopeless. Luckily there was a lymphedema center where I lived so I was able to get proper attention for it!