Tag Archives: blog

Faces of Lymphedema Project

Hey, everyone! I’ve got super exciting news to share with you, but I’m going to need your help to make it happen. I’ve decided to start a project – The Faces of Lymphedema Project – that will become a new feature on the site. I want to create a page that shows all of us celebrating our lives and not letting our medical condition get in the way of doing the things that we love. The most exciting part is that it will feature the real faces of lymphedema – all of you!!

I need my lovely lymphie readers to help make this happen by sending in some submissions for the page. Here’s what I would like from you:

  • A picture of you – preferably of your face!
  • A small blurb about yourself and the things you enjoy doing – please keep the lymphedema talk to a minimum!
  • Another picture of you doing something you love or something you are proud of – be it a picture of you at dinner with your friends, a painting you did, or a beautiful cake you made… share it with us!

Too often we get so caught up in our lymphedema that we forget that there are so, so many other great things about our lives. We are more than this disease. We are more than our compression garments, and our embarrassment, and our discomfort. We are beautiful people who lead beautiful lives, so why not celebrate?!

Obviously, there is no pressure to share. If you would like to send text but no picture, that’s perfectly fine! Please share as much as you feel comfortable. Once I collect enough, I’ll launch the page – but I will continue to accept more submissions whenever they come in :)

Send your submissions to this email address: facesoflymphedema@gmail.com
I look forward to hearing from you!

xoxo Alexa

What’s Coming Up..

Hey, lymphies!
I have some big plans for some upcoming posts on the blog, and I wanted to share them with you so that you can get just as excited as I am about them. So, here’s what I had in mind…
-Fashion, clothing, & style. How does lymphedema affect your style, and how can you have clothes work for you rather than against you? This post would also include pictures of yours truly trying out some tips to draw attention away from your lymphedema and on you, instead!
-Exercise. What are some exercises you can do with lymphedema? How does exercise affect it, and vice versa?
-Food. Which foods should you avoid? I’m lookin’ at you, sodium..
-Travel. Traveling with lymphedema can be a pain, but hey, it can be done! I’ve been to eight countries and was able to manage my lymphedema. I’m going to share some travel tips as well as exercises you can do on the plane or train to keep your circulation moving.
-Shoes. Suchh a hot topic for us lymphies, and definitely the most common question I get from your emails. Shoes will be discussed in abundance, including the best kinds to wear as well as the comfiest. Also: socks.
-Routine. What’s your daily routine? I think it’s safe to say that the lymphies who visit this site have a wide range of practices, if some of us even have a routine at all. I want to talk about mine (and my lack thereof) as well as hear about yours. I also want to discuss what’s a “manageable management routine” that can be done for those of us who feel like we don’t have a lot of time to devote to care.

As always, I want to hear your comments on these, as well as give me suggestions for future posts. I’m so sorry I’m not keeping up with this as regularly as I should! School has been busy, and I’ve come down with a bug, which of course makes everything about ten times more miserable. But please – keep sending in your comments and emails, and tell me what it is you want to see discussed on the blog! Let’s get a conversation going :)
xox Alexa

I’m still here!

Hey, everybody!

I’m soo sorry I haven’t posted in a while – things have been super busy lately with school and such. I know it’s not an excuse, but I want to let you know that I’m serious about keeping up this blog and adding lots of cool stuff, like tips and tricks on living with your lymphedema.

Also: I want to hear from you!! Please leave comments, or send me an email! Let me know the kind of stuff you’d like to see discussed, or share your story. I love receiving comments from you :)

PS: Over the weekend I went to the Dew Tour in Killington, Vermont. I got to see snowboarders and skiers compete, and it was a lot of fun. However, it was SO COLD. Like, negative thirteen degrees kinda cold. Brrr. Check out a couple pics below: